Caregivers experiences in caring for children with hydrocepalus attending physiotherapy at the University teaching hospital D-block and CBI, Lusaka

Abstract

The purpose of this study was to evaluate the caregivers' experiences in caring for children with hydrocephalus attending physiotherapy at UTH-block and CBI.A quasi experimental, cross sectional descriptive study was undertaken. Data was collected from 25 respondents, using a semi structured interview guide with open ended questions and a semi structured questionnaire. Data was analyzed using the statistical package for social sciences, descriptive and inferential statistics were used for the analysis of data. The results showed that most caregivers experienced profound sadness and rage; their care giving may be driven by empathy and love. Results showed that 68% reviewed to have experienced sadness on conditions of their children and 12% shock. On psychological impact 52% were emotionally drained, 24% stressed, 12% depressed, 4% optimism. On activities that caregivers found to do to their children, 52% expressed exercising the child, 24% bathing the child, 16% found feeding the child more enjoyable and 8% changing nappies.The results also show that 44% were moderately affected, 40% severely and 16% not at all affected by the child's condition.